MUSCULAR DYSTROPHY ASSN OF AMERICA Care & Clinical Services Specialist in CEDAR RAPIDS, Iowa

Job DescriptionAt MDA:Our Values are our strength: We believe in MUSCLE:Mission: We're driven to accelerate progress for families and muscle health.Understanding: We're attentive to our constituent's needs and each other's.Stewardship: By investing precious resources wisely, we drive the best possible outcomes.Collaboration: We foster win-win partnerships and build communities.Learning: Knowledge powers our success and empowers our people.Excellence: We strive to do our best and exceed constituents' expectations.Position Description:The Care & Clinical Services Specialist will report to the Director of Care & Clinical Services. The primary responsibility of this role is Care Center and family support and engagement. This individual will oversee Care Center responsibilities and the implementation of support, education and engagement programs for the community MDA serves in their territory. S/he is responsible for planning, volunteer recruitment and implementation of MDA's summer camp program, with support of national initiatives, and will direct/co-direct summer camp session(s). The Care & Clinical Services specialist will be heavily engaged in clinical settings, but will not at any time provide direct patient care or dispense medical advice.Responsibilities:Develop and maintain a strong relationship with MDA Care Centers in the territory; frequent communication with Care Center team members, strong working relationships with the Care Center team members, including with Care Center Director(s)Attend the Care Centers in the territory as the MDA RepresentativeServe as liaison between the Care Center teams and MDASupport and promote engagement in the MDA disease registry in participating MDA Care Centers.Responsible for signing up families with MDA and, for maintaining accurate and complete information in the MDA community databaseRelationship management and outreach with all families in the territoryDirect/co-direct summer camp session(s) which requires overnight stay and travel to/from campWork closely with MDA's National Resource Center and share information with Resource Specialists to ensure families have access to supports and servicesBecome knowledgeable of state and local resources that could benefit MDA's communityDevelop and manage community and family outreach planWork with the Program Development department and team supervisors in the development and implementation of educational and family events throughout the yearManage and maintain communications calendar with families and local and regional stakeholdersEngage in continuous quality improvement activities and exercisesOversight of community programs that serve families in the territory, including ensuring the programs run efficiently, are meeting program objectives, and are compliant with budget and planning parameters.Responsible for working with and supporting volunteers to ensure MDA is serving the community with excellence and optimal support through the programs we provideOther duties as assignedCompetencies:Adaptability: Adapts to changes in the work environment; Manages competing demands; Changes approach or method to best fit the situation; able to deal with frequent change. Must be able to work in a dynamic, complex, fast-paced organization.Communication Skills: Clearly and persuasively communicate, listen and seek clarifications; participate in meetings, write clearly and informatively, comfortable with public speaking.Professionalism: Work well in a fast-paced environment; treat others with respect and consideration; accept responsibility for own actions. Understand business implications of decisions, align work with strategic goals, complete administrative tasks and develop strategies to achieve organizational goals.Teamwork: Balances team and individual responsibilities; Exhibits objectivity and openness to others' views; Gives and welcomes feedback; Contributes to building a positive team spirit; Puts success of team above own interests; Abili